Future Studies


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The Experience of Patients with Epidermolysis Bullosa (EB) in the US

This market research study is being conducted with adult patients or parents of patients in the US who have EB. The objective of this research is to better understand the issues that are faced by patients with EB, including the issues around current therapies. The research consists of an approximate one hour telephone interview that will be conducted by a trained interviewer. Individuals who complete the interview will be provided a $100 (US dollar) check in recognition of their time.

EB patients are eligible to participate if they are age 18 years or older, we will also interview parents/legal guardians of children with EB. To participate go to EB Market Research RSVP. After you have provided a few days/times that work for you for the interview, we will reach out to you to confirm your interview time, or to notify you that the interviews are full, if that is the case.