Future Studies

Burden of Illness in Fibrodysplasia Ossificans Progressiva (FOP)

          Our client is interested in measuring the burden of illness in FOP. Eligible patients will be asked to take an approximate 60 minute survey to measure the impact of the disease on their emotional and social well being, their daily activities, their utilization of healthcare resources and other issues. To learn more click [link will be available when survey opens].

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