Needs of Patient and Families Impacted by Leber congenital amaurosis
Leber congenital amaurosis (LCA) is a family of congenital retinal dystrophies that results in severe vision loss at an early age. This research, sponsored by Hope in Focus, aims to better understand the needs of patients and families who have been impacted by LCA.
If you are a person or parent/legal guardian of a person diagnosed with LCA, and you are interested in learning more or participating, click here. At the screen, please check the box that says “Check if you have no code” to proceed to the survey.