| Time Elapsed: |
0 seconds |
| Time Remaining: |
0 seconds |
| Total Time: |
0 seconds |
Anonymous Login Code: Code Entry Page
Email
Note: Save this code which is required to update your response at a later time. This code is randomized differently on each page, and despite changing, will still go to the proper response and you only need to save one code.
|
|
|
|
|
|
Welcome
| |
| |
Thank you for your interest in the Adult Cystinosis Webinar: Beyond the Kidneys. The objective of the webinar is to support education targeted towards both patient and healthcare providers by highlighting the publication, Addressing the Multisystemic Impacts of Nephropathic Cystinosis in an Adult. Next Generation of Cystinosis aims to explore patient and provider perspectives on adult care challenges and identify educational priorities and unmet needs within the adult cystinosis community.
The Adult Cystinosis Webinar: Beyond the Kidneys will be held Thursday, August 6th, 2026, via Zoom Webinar. The webinar will begin at 4:00 p.m. CT (5:00 p.m. ET/2:00 p.m. PT) and will conclude by 5:00 p.m. CT (6:00 p.m. ET/3:00 p.m. PT).
Please complete this RSVP to confirm your attendance to the Adult Cystinosis Webinar: Beyond the Kidneys on August 6th.
We appreciate your participation and look forward to a very productive webinar!
Steve Schleuder
President
Next Generation of Cystinosis
nextgenerationofcystinosis@gmail.com
Rebekah Palmer
Co-Founder & Advisor
rebekah-palmer@nextgencystinosis.org
Dr. Jeanine Jarnes
Medical & Research Advisor
utzx0002@umn.edu |
| |
|
|
|
| |  | |
|
|