Join Health Research
We understand hurdles you face. Rare diseases are an uphill battle – lack of awareness and a complex healthcare system often leave patients and those caring for them lost. After diagnosis, therapies and services are difficult to access, if they even exist. Developing effective treatments is difficult too because few researchers and funds need to be connected with scattered populations of patients.
We investigate the impact of these diseases and bring patients and potential therapies together to improve lives. Join us if you are a patient, family member, or healthcare provider interested in participating in health research.