![](https://www.engagehealth.com/wp-content/uploads/2020/06/RareDiseaseCircleR.jpg)
We have been humbled by the stories of persons who have contributed immensely to the rare disease space. Many such heroes work tirelessly, often without acknowledgement. The Rare Disease Difference Maker® project was created to recognize these researchers, physicians, organization leaders, patients, parents, teachers, friends, and more. Click the images below to learn how each of these individuals made a difference.
![](https://www.engagehealth.com/wp-content/uploads/2023/08/J-Mauro1-375x500.jpg)
John Mauro
![](https://www.engagehealth.com/wp-content/uploads/2022/10/rene-e1666383638117-409x500.jpg)
Rene King
![](https://www.engagehealth.com/wp-content/uploads/2022/08/Kareem-Sarita-Elijah-scaled-e1660926777830-381x500.jpg)
Sarita and Kareem Edwards
![](https://www.engagehealth.com/wp-content/uploads/2022/04/Picture1-500x334.png)
Christian Lundin
![](https://www.engagehealth.com/wp-content/uploads/2022/03/pic-5zz.jpg)
Zeke Zaragoza
![](https://www.engagehealth.com/wp-content/uploads/2022/03/Erica-500x333-1.jpg)
Erica Barnes
![](https://www.engagehealth.com/wp-content/uploads/2022/02/NNPDF-photo-500x433.jpg)
Joslyn Crowe and Laurie Turner of the NNPDF
![](https://www.engagehealth.com/wp-content/uploads/2022/01/Team-picture-500x375.jpg)
Little Hercules Foundation
![](https://www.engagehealth.com/wp-content/uploads/2021/07/SRotbergcover-500x375.jpg)
Seth Rotberg
![](https://www.engagehealth.com/wp-content/uploads/2022/01/Mary-Beth-Kiser-Coverr-1-500x492.png)
Mary Beth Kiser
![](https://www.engagehealth.com/wp-content/uploads/2021/12/Reena-cover-photo-500x500.jpg)
Reena Kartha
![](https://www.engagehealth.com/wp-content/uploads/2021/10/Jill-500x500.png)
Jill Sisco
![](https://www.engagehealth.com/wp-content/uploads/2021/06/Photo-3-COVER1-500x375.jpg)
Ramaiah Muthyala
![](https://www.engagehealth.com/wp-content/uploads/2021/03/EvanBock-333x500.jpg)
Evan Bock
![](https://www.engagehealth.com/wp-content/uploads/2021/03/AllisonBones.jpg)
Allison D’Ambrosio Bones
![](https://www.engagehealth.com/wp-content/uploads/2021/02/MohamedDuklef-376x500.jpeg)
Mohamed Duklef
![](https://www.engagehealth.com/wp-content/uploads/2020/12/RichardHollSmile.jpg)
Richard Holl
![](https://www.engagehealth.com/wp-content/uploads/2020/07/Dominque.jpg)
Dominque Goodson
![](https://www.engagehealth.com/wp-content/uploads/2020/03/rev-e1584027204476.jpg)
The Rare Revolutionaries
![](https://www.engagehealth.com/wp-content/uploads/2019/11/AnneRugari-500x334.jpg)
Anne Rugari
![](https://www.engagehealth.com/wp-content/uploads/2019/06/AbbeyHauser1.png)
Abbey Hauser
![](https://www.engagehealth.com/wp-content/uploads/2019/03/Tux-e1552925174303-375x500.jpg)
Dean Clifford
![](https://www.engagehealth.com/wp-content/uploads/2018/11/Michele-Rhee-headshot-002-500x493.jpg)
Michele Rhee
![](https://www.engagehealth.com/wp-content/uploads/2018/08/Abigail-Ostrea-500x500.jpg)
Abigail Ostrea
![](https://www.engagehealth.com/wp-content/uploads/2018/08/pic-1-500x333-1.jpg)
Rob Long
![](https://www.engagehealth.com/wp-content/uploads/2018/07/JD-Faccinetti-372x500.jpg)
JD Faccinetti
![](https://www.engagehealth.com/wp-content/uploads/2018/07/Ben-500x500.jpg)
Ben Munoz
![](https://www.engagehealth.com/wp-content/uploads/2018/06/Brittany-500x500.jpg)
Brittany Cocilova
![](https://www.engagehealth.com/wp-content/uploads/2018/06/Carri-Levy.jpg)
Carri Levy
![](https://www.engagehealth.com/wp-content/uploads/2018/06/Untitled.jpg)
Ilana Jacqueline
![](https://www.engagehealth.com/wp-content/uploads/2018/05/Marilyn.jpg)
Marilyn Schanbeck
![](https://www.engagehealth.com/wp-content/uploads/2018/05/Teri27s-photo.jpeg)
Teri Koerner
![](https://www.engagehealth.com/wp-content/uploads/2018/05/Laurie-1-500x477.jpg)
Laurie Sterner
![](https://www.engagehealth.com/wp-content/uploads/2018/05/ResponseID133535ItemID30242RobbFreed-413x500.jpg)
Robb Freed
![](https://www.engagehealth.com/wp-content/uploads/2018/05/Jennifer-Champy-382x500.jpg)
Jennifer Champy
![](https://www.engagehealth.com/wp-content/uploads/2018/04/Daphne-1.jpg)
Daphne Adelman
![](https://www.engagehealth.com/wp-content/uploads/2018/04/Cara-ONeill-2-456x500.jpg)
Cara O’Neill
![](https://www.engagehealth.com/wp-content/uploads/2018/03/Julia-Alton-photo-500x500.jpg)
Julia Alton
![](https://www.engagehealth.com/wp-content/uploads/2018/03/MBK-HD-picture-500x333.jpg)
Marybeth Krummenacker
![](https://www.engagehealth.com/wp-content/uploads/2018/03/Photo-on-7-15-14-at-73-500x333.jpg)
Paul Martinez
![](https://www.engagehealth.com/wp-content/uploads/2018/02/MHogan3-500x500.jpg)