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Rare Disease Difference Maker®

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  2. Rare Disease Difference Maker®

We have been humbled by the stories of persons who have contributed immensely to the rare disease space. Many such heroes work tirelessly, often without acknowledgement. The Rare Disease Difference Maker® project was created to recognize these researchers, physicians, organization leaders, patients, parents, teachers, friends, and more. Click the images below to learn how each of these individuals made a difference.

Nominate Your Rare Disease Difference Maker®

Reena Kartha

John Mauro

Rene King

Sarita and Kareem Edwards

Christian Lundin

Zeke Zaragoza

Erica Barnes

Joslyn Crowe and Laurie Turner of the NNPDF

Little Hercules Foundation

Seth Rotberg

Mary Beth Kiser

Jill Sisco

Ramaiah Muthyala

Evan Bock

Allison D’Ambrosio Bones

Mohamed Duklef

Richard Holl

Dominque Goodson

Anne Rugari

Abbey Hauser

Dean Clifford

Michele Rhee

Abigail Ostrea

Rob Long

JD Faccinetti

Ben Munoz

Brittany Cocilova

Carri Levy

Ilana Jacqueline

Marilyn Schanbeck

Teri Koerner

Laurie Sterner

Robb Freed

Jennifer Champy

Daphne Adelman

Cara O’Neill

Julia Alton

Marybeth Krummenacker

Paul Martinez

Melissa Hogan

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  • Rare Disease Difference Maker® is a trademark of Engage Health, Inc.
  • Engage Health is a proud member of the Rare Collective®
  • Rare Collecive® is a trademark of Rare Collective, LLC.
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