
We have been humbled by the stories of persons who have contributed immensely to the rare disease space. Many such heroes work tirelessly, often without acknowledgement. The Rare Disease Difference Maker® project was created to recognize these researchers, physicians, organization leaders, patients, parents, teachers, friends, and more. Click the images below to learn how each of these individuals made a difference.

Richard Holl

Dominque Goodson

The Rare Revolutionaries

Anne Rugari

Abbey Hauser

Dean Clifford

Michele Rhee

Abigail Ostrea

Erica Barnes

Rob Long

JD Faccinetti

Ben Munoz

Brittany Cocilova

Carri Levy

Ilana Jacqueline

Marilyn Schanbeck

Teri Koerner

Laurie Sterner

Robb Freed

Jennifer Champy

Daphne Adelman

Mike Schmidt

Cara O’Neill

Julia Alton

Marybeth Krummenacker

Paul Martinez
