Engage Health is currently conducting a study of the burden that patients and families experience related to Late Onset Pompe Disease (LOPD).  The study will be open to patients who have been diagnosed with Late Onset Pompe Disease (LOPD) or their parent/legal guardian and is currently enrolling.  Participants will be involved in a one-hour telephone interview and will receive an honorarium for participation.

To begin, go to this link and click on start to complete the survey.  All questions marked with an asterisk (*) are required.  If you are unable to reach the link from this email, copy and paste the following in your browser bar; https://www.engagehealth.com/survey/TakeSurvey.aspx?SurveyID=76KJ5785

Upon receipt of your responses, someone from Engage Health may contact you for scheduling your interview.

Thank you!