Idiopathic Intracranial Hypertension: Patient Quality of Life Questionnaire (IIH-QOL)

This study is being sponsored by NBO Pharma, a company developing a potential new treatment for idiopathic intracranial hypertension (IIH), and being conducted by Engage Health, Inc., a health research company. The objective of the survey is to gain a better understanding of the experiences and perspectives of people living with IIH.

NBO Pharma has also created IIHConnect.com, an online resource designed to provide patients, caregivers, healthcare professionals, and others with reliable, up-to-date information about IIH. The site includes IIH education, expert videos, patient stories, community resources, and an AI-powered tool called Ask Isaiah that allows visitors to explore questions about IIH.

People living with IIH are encouraged to participate in this brief, 20-minute survey and will receive a $100 honorarium for completing the survey.

Click here to learn more and participate.

Please note that NBO Pharma will not collect any information directly from patients. All content found on IIHConnect.com, including text, images, audio, and other formats, has been created for informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.