Understanding the Diagnostic Odyssey, Burden of Disease, and Treatment Burden in Cystinosis

The knowledge gained from this project will help Novartis better understand the diagnostic odyssey and the disease and treatment burden experienced by persons diagnosed with Cystinosis. With this knowledge, they can better work to develop therapies and support programs.

If you are interested in learning more or participating, click here.  At the screen, please check the box that says “Check if you have no code” to proceed to the survey.