Engage Health along with IndoUSrare (a non-profit organization focused on accelerating diagnostics and therapies for rare diseases) and Ginkgo Leaf Rare Disease Family Care Center (non-profit organization supporting rare diseases patients in China) aim to better understand the cultural motivators and deterrents for rare disease patients and their caregivers when considering participation in a clinical trial.  Currently the study has been launched in Mandarin for persons in China.  Other languages will be coming soon so please check back!

• If you reside in or are from China, and you are a person or the parent / legal guardian of a person diagnosed with a rare disease, click here to participate in this 20 minute survey