Erica Barnes is an indefatigable advocate for rare disease communities. She started the non-profit Chloe’s Fight with her husband and serves as the ambassador to Minnesota for the National Organization for Rare Disorders. Most recently, we are excited Erica successfully pushed for Minnesota’s creation of an advisory council focused on the research and treatment of rare diseases. Click here if you would like to view Kare 11’s segment on Erica’s efforts to pass the bill or click here if you would like to read our article on her as a Rare Disease Difference Maker®.

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