We have been humbled by the stories of persons who have contributed immensely to the rare disease space. Many such heroes work tirelessly, often without acknowledgement. The Rare Disease Difference Maker® project was created to recognize these researchers, physicians, organization leaders, patients, parents, teachers, friends, and more. Click the images below to learn how each of these individuals made a difference.
Jiayi (Bryan) Yan
Reena Kartha
John Mauro
Rene King
Sarita and Kareem Edwards
Christian Lundin
Zeke Zaragoza
Erica Barnes
Joslyn Crowe and Laurie Turner of the NNPDF
Little Hercules Foundation
Seth Rotberg
Mary Beth Kiser
Jill Sisco
Ramaiah Muthyala
Evan Bock
Allison D’Ambrosio Bones
Mohamed Duklef
Richard Holl
Dominque Goodson
Anne Rugari
Abbey Hauser
Dean Clifford
Michele Rhee
Abigail Ostrea
Rob Long
JD Faccinetti
Ben Munoz
Brittany Cocilova
Carri Levy
Ilana Jacqueline
Marilyn Schanbeck
Teri Koerner
Laurie Sterner
Robb Freed
Jennifer Champy
Daphne Adelman
Cara O’Neill
Julia Alton
Marybeth Krummenacker
Paul Martinez
